We finally made it to the 1p36 Deletion Support and Awareness conference this year. It was, in a word, awesome. Finally we got to rub elbows, hob nob, and mix with all the people we have only see in .jpg format. We found out some interesting facts on the genetics of it and got to listen to the panel of therapists answer questions on a wide variety of topics.The first day, it was just Ira and I and Misha. The highlight of the day, of course, was Rachel Coleman. As she was the first item on the first day, she was there when we arrived. I pointed her out to Misha and asked him who that was. He answered without hesitation "Signing Time". Her presentation was a mix of songs for the kids and talking about her story for the adults. And she was gracious enough to stay afterward for a photo shoot with any and all the families who desired. After lunch, there was an optional activity at the Gateway fountain. Misha didn't know what to think at first, but then he started running around himself to get soaked.
T
he next day, we brought the rest of the gang for the Sib Camp. The kids thought it was great too. As you can see, Nikolai was really enjoying a rich chocolate brownie in the hallway.Thanks Nate, Melanie, Phoenix and the others who got it all organized. It was great.
We also went camping a couple of times with Ira's friends up above Sundance.
And went on a hike to Stewart Falls.
2 comments:
Awesome. Looks like it did y'all some good. Fun!
Glad you guys made the conference. It was a lot of fun to hang out again. I was amazed by how many great 1p36 families we have nearby. We'll have to get together again soon.
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